We disaggregate data by demographics, including race, in every policy and program measured We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders. We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support. We analyze disaggregated data and root causes of race disparities that impact the organization/'s programs, portfolios, and the populations served. We ask team members to identify racial disparities in their programs and/or portfolios. We review compensation data across the organization (and by staff levels) to identify disparities by race. Research is focused specifically on cancers, some acquired and inherited immunodeficiencies, sickle cell disease, infectious diseases and genetic disorders. Research efforts are directed at understanding the molecular, genetic and chemical bases of catastrophic diseases in children identifying cures for such diseases and promoting their prevention. It is supported primarily by donations raised by ALSAC. ![]() Jude Children's Research Hospital is to find cures for children with cancer and other catastrophic diseases through research and treatment. (More) ALSAC (American Lebanese Syrian Associated Charities) was founded in 1957 and exists for the sole purpose of raising funds to support the operating and maintenance of St. “I have a father who is a cancer survivor, and I have friends whose kids are cancer survivors and it was a big help for them.Memphis TN | IRS ruling year: 1980 | EIN: 35-1044585ĪLSAC (American Lebanese Syrian Associated Charities) was founded in 1957 and exists for the sole purpose of raising funds to support the operating and maintenance o . Jude helps these families and these kids through something that is very traumatic,” Pilcher said. Jude by leading yoga classes online because she said she believed in the hospital’s mission. Sarah Thomas Pilcher, a public health advocate from Little Rock, Arkansas, started raising money for St. Among other things, he takes $10 donations to play Bean Boozled, a favorite of his younger viewers, in which he eats a mystery jellybean that could taste like either chocolate or dog food. Jude, Mairs raised more than $20,000 last year and an additional $15,000 in the first half of 2021 by playing videogames and requesting donations. Jude after his 10-year-old cousin, Faith, received treatment there for Stage 2 Ewing sarcoma, a rare cancer in which a tumor grows in bones or the cartilage surrounding them.Īccording to St. “They’re just always going above and beyond to make sure that the patients are OK,” said Mairs, who learned about St. Jude since 2018, when he first recognized that his hobby could be harnessed to raise money for charity. A 22-year-old senior in communications studies at the University of North Texas, Mairs has raised nearly $50,000 for St. “We wanted to reach our audiences where they were,” he said.Ĭonsider “Smirky,” the online persona of Michael Mairs of Denton, Texas, who has built a community of nearly 16,000 followers on Twitch, where people watch him play the video game Toontown. The hospital did outreach not only on major social media platforms like Facebook and Twitter but also on the exercise platform Strava and the gamer haven Twitch. Jude substantially increased its investment in digital fundraising and new technologies. Jude, in particular, already had a lot of those online fundraisers in place and the different types of online engagement they do specifically around cancer and children.”Īfter the pandemic erupted in March of last year, Shadyac said, St. “The organizations that did well in health were the ones that had the ability to pivot - those who moved to digital fundraising and online events quickly,” Osili said. Una Osili, an associate dean at the Lilly Family School of Philanthropy at Indiana University who led the research and production of the report, said the drop in donations to health-related organizations was due mainly to the reduction of in-person fundraising events because of COVID-19 and other pandemic-related factors, like the “Grateful Patient Effect": Because hospitals had to reduce their face-to-face interactions, the pool of patients who might have donated to the hospital after having personally seen it in action had shrunk. ![]() Donations to health-related organizations fell 3% in 2020 compared with 2019, according to Giving USA, the annual report for philanthropy from The Giving Institute. Jude from most other health-related charities in 2020.
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